We were home three weeks when CJ got his first fever. This was strange for me as when we brought him home he was cold so I would put him in a onsie, an outfit, a blanket and kept the fireplace running. I brought him to the ER where the on call baby doc thought he had diabetes insipidus. We were arranged to fly to Denver right away for further testing and a clear diagnosis. Chris and Isaac were still in Montana with family and came back early.
CJ was poked more than you can imagine and went through several tests to determine that he does have diabetes insipidus. Most people just hear the diabetes part and assume that its diabetes melitis like most people in the US have with poor control of their blood sugar. This is not related to that other than the fact that he pees, a lot. In his case he is unable to regulate the sodium in his body. His pituitary gland does not release the chemical that tells his kidneys how much to pee so his kidneys just keep going. Having high sodium or low sodium are both problematic leaving him at risk for seizures and dehydration. So right now we are able to control this by adding the water right back into his system. It is a little tricky to determine how much water to give him. But right now we are taking him to the lab twice a week to have it monitored. We are adding the water right to the breast milk in his bottle. This cuts the calories he is eating (no cals in water) so we are also adding canola oil to the mix as well in hopes he keeps growing. He lost a pound after he was born and had difficulty putting it back on because he keeps peeing so much. Fluctuations in his sodium make him cranky so he's not the happiest baby I've had and sleeps like Zoey (only when I hold him, screams when I put him down). So after running antibiotics and getting his sodium under control we went home after about a week and a half. We were sent home with oxygen because when he was off of it his stats kept dropping. So after we got home a company came and dropped off a ton of equipment for his oxygen. However, we drove home on Saturday and he got a fever again on Wednesday. We were home for three days. We were admitted to Gillette's hospital for observation where things got bad and they flew us back to Denver. He was given fluids, antibiotics and even a transfusion and he was back to doing great. But we had to wait 7 days for the full dose of antibiotics this time. Not giving him the weenie doses anymore. While we were there a cancellation came up for the sleep study and we snatched it up while we were there. It was determined from that that he does not need oxygen anymore. YEAH!
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